My name is Christina (Tina) Raj, and I live with Ichthyosis in India.
Ichthyosis is a family of rare, severe skin conditions. It is not widely known or supported in India and so I have created this blog as a resource to help people with Ichthyosis, their families and also people who want to find out more about the condition.
There are over 25 types of Ichthyosis, ranging in severity and appearance and treatment, and I have Lamellar Ichthyosis as well as Psoriasis. I was born with Ichthyosis, there is no cure, and I manage my skin condition by applying glycerin and white petroleum jelly. I also have trouble with my temperature regulation, and so I don't cope well in the heat, and also find it hard to warm up. I experience pain in my skin as well as my joints and bones. I have experienced corneal abrasions, cataracts and partial blindness because of my Ichthyosis.
There are over 25 types of Ichthyosis, ranging in severity and appearance and treatment, and I have Lamellar Ichthyosis as well as Psoriasis. I was born with Ichthyosis, there is no cure, and I manage my skin condition by applying glycerin and white petroleum jelly. I also have trouble with my temperature regulation, and so I don't cope well in the heat, and also find it hard to warm up. I experience pain in my skin as well as my joints and bones. I have experienced corneal abrasions, cataracts and partial blindness because of my Ichthyosis.
I have encountered a lot of discrimination because of my skin and appearance, and I want to write more about my experiences to help stop this discrimination.
I want to spread awareness that Ichthyosis is not a curse.
I like to listen to music, I like to sing, and I like to dance when I can.
I know a lot of people with Ichthyosis in India - it's nice to connect and relate to them. I want to help children with Ichthyosis because I understand what it's like to grow up with Ichthyosis.
